The Little Ones (Group Contribution Copy)

In recent years, cancer fundraising and awareness events has become an easy way for people to express support in the fight for a cure. However, studies indicate that not many people actually learn more about cancer from awareness activities. Furthermore, fundraising and awareness are poorly distributed through different types of cancer, meaning, some cancers are receiving millions of dollars annually, while smaller cancers struggle to to finance the basic needs of treatment.

No matter the survival rate, ‘popularity’, or funding, cancer is a scary disease that deeply touches the lives of people across the world. What makes this fact scarier is that some people do not understand the several different forms that cancer can take and how it can effect patients in more ways than just physical health.

The Little Ones is an online foundation that provides resources to educate others on several different aspects of smaller, less common cancers. Resources include patient video logs, blog posts, and articles that introduce different perspectives of the effects of cancer that they may not have known of before.

The Little Ones will also provide articles that will allow patients and family members to think beyond the medical treatment of cancer, such as emotional and spiritual health. Research has proven that stable emotional health plays a major role in cancer treatment, but it is also the hardest to maintain during such a difficult journey. Video logs of actual cancer patients during their treatment will be included in this website, providing hope and comfort to all those who are involved in the journey to treatment.

Finding the cure to cancer is not an easy task, but if there is equality in attention and fundraising in all different types and effects of cancer, we can bring ourself that much closer to a cure.

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Call for Submissions Journal Cancer _______

Call for submissions journal ______

Cancer support

-Cancer funding

-Cancer regimens

-Cancer theories

-Cancer research

-Cancer narratives (news, journalism,pop culture)

-Cancer narrative medicine

-Cancer Survivorship

http://cancerdiscovery.aacrjournals.org/content/5/2/102.2.full

*talks about Two immunotherapy drugs are showing promise for treating patients with Hodgkin lymphoma (HL) who failed to respond to other therapies.

http://www.hindawi.com/journals/bmri/si/969808/cfp/

*Development of naturally derived anticancer drugs, therefore, is crucial, and isolation of novel compounds has become an important part of cancer research.

*Phytochemicals are chemical compounds that occur naturally in plants

http://www.theintima.org/crossroads/should-doctors-redraft-the-hippocratic-oath-zohar-lederman

*deals with caring for patients linked me to Dan Lufig

http://www.theintima.org/paradoxical-wishes.html

“So what I’ve begun this past week is to divide this time into five minutes of such self-indulgence and five minutes of mindful positive thoughts towards my patients. I don’t really have a good explanation for why I’m doing this other than the fact that it just feels right. (And if those prayer studies are to be believed, it may constitute some cost-effective healthcare as well.”

*this stuck out to me because It shows that some doctors don’t suffer from a doctor patient gap, this guy sounds like he’s there for his patients even out side of work, he manages to incorporate other peoples issues into his own state of prayer or meditation

http://www.jcancer.org/

http://onlinelibrary.wiley.com/doi/10.1002/pon.3763/abstract

*objective: evaluate the mode of delivery of a stress management intervention, in a group or individual setting, on self-reported cancer-related traumatic stress symptoms. A secondary aim was to evaluate a stepped care approach 

In the grand scheme of things

I was asked to read some of information that my group gathered individually. Reading each persons piece helped me take in new information and be able to rely on new sources.

Megan’s inquiry log 3 post, she talks about how there are problems with communication between doctors and patients. Kayla’s inquiry log 2 talks about how she wishes there could be more “equality” in the cancer world. Immanuel’s Inquiry Log 2 talks about how breast cancer can be a gateway to increase the awareness of other cancers because all cancers need to be made aware of due to funding, prevention, and learning early symptoms.

In the grand scheme of things we’re moving into new directions. Ultimately we just all seem to be focusing on cancer patients and what they go through. There should be more awareness for all cancers no matter where they stand on the scale of more deadly, or more people affected. There should be more support from organizations, and even doctors.

My group members each did a great job with their inquiries. Ultimately I see that our inquiry about cancer is growing as we find other ways to expand our initial inquiry question. We’ve formed questions about the main purpose of partaking in cancer awareness, whether or not there is enough support for cancer patients, and the mental/emotional health of a person diagnosed with cancer.

Points in a Reflection Piece

There are 3 primary areas of reflection

1.Identify: capture a moment that is a significant to you as a writer so that you can come back a have a new perspective or elaborate on it. The moment doesn’t have to have changed you

2.Analyze: framework can be a religious, class room, ethics, writing class stance. think of ideas and try to relate them to something personal, question them, take other people’s opinions & questions into account

3.Articulate: form new understandings, making walk away statements, what learning took place, shows change in thinking… notice challenges and accomplishments “In the future I will” – isn’t necessary

*True work of reflection isn’t a summary, or just a free write. You need all 3 components not necessarily in that order.

Example:

Argument in relationship

1. think of the actual argument recall how angry you were, mean things said etc

2. You can think of what the bigger picture, what did the argument stem from, what was trying to be said that wasn’t necessarily said

3. I need to learn to listen to understand and not listen to respond

There’s more to Cancer

  • What are the concerns of the authors I’ve been reading?
  • What situations motivate them to write?
  • What frames or contexts do they use to construct their arguments?
  • What is my argument in response to their writing?
  • What is at stake in my argument?
  • Who will be interested in reading what I have to say?
  • How can I connect with both sympathetic and antagonistic readers?
  • What kinds of evidence will persuade my readers?
  • What objections are they likely to raise?

According to “From Inquiry to secondary writing” after inquiry you will discover that writing grows out of answering a few questions. (The questions were listed above). To answer these questions, you must read in the role of writer by doing 3 things, 1. Identity an issue, then 2. Understand the situation, and lastly 3. Form a question.

After my 2nd inquiry log I realized that it was time to take my questions into a new direction. It was so hard finding information around my group’s topic. Clearly we needed questions that could create a bigger picture. We were asked to find four new sources that may help with displaying a new angle on the inquiry proposal.

I realized how upsetting it could be to be diagnosed with any form of cancer. Whether it is less common, or more common I’m sure the news can make anyone feel uneasy. Then I thought back to the fact that the one particular cancer might be more publicized then others. I wondered how would it make me feel to know that what I’m going through isn’t receiving as much attention as I’d like. To feel like no one is out raising awareness on my behalf.

A video on Ted Talks caught my attention https://www.ted.com/talks/guy_winch_the_case_for_emotional_hygiene .One of the statements posed in the video was “We’ll go to the doctor when we feel flu-ish or a nagging pain. So why don’t we see a health professional when we feel emotional pain: guilt, loss, loneliness?” It made me think of how there needs to be more support for cancer patients and not just through extending cancer awareness. Doctors tend to focus on the bigger picture of curing cancer, it seems that they don’t take the time aside to check in on the patients mental/emotional well being after being diagnosed. Ultimately it’s up to the patient to pick himself or herself up and stay optimistic. Guy Winch a compelling case to practice emotional hygiene, which is taking care of our emotions, our minds, with the same diligence we take care of our bodies. The framing this author uses deals with the fact that people need to not only focus on physical setbacks but the mental/emotional ones need attention too.

An article http://link.springer.com.librarylink.uncc.edu/article/10.1007/s00520-003-0585-y/fulltext.html stuck out to me. It was about a large proportion of cancer patients tending to experience psychiatric morbidity. Predictors of psychiatric morbidity include patient disease-related factors and factors relating to the patient’s environment. The article was written around a health questionnaire given to Turkish cancer patients. “Psychiatric morbidity was significantly higher in the patients who knew that they had a cancer diagnosis. These findings suggest that the awareness of cancer diagnosis is related to the presence of psychiatric morbidity.” I learned that understanding of the diagnosis indirectly may be stressful to cancer patients and can arouse suspicion about the cancer and treatment, which can lead to psychiatric disturbance. Therefore “prior history of psychiatric disorder, the presence of pain and family support are determinants of vulnerability to psychiatric disorder during the course of cancer.” Effective and clear communication is essential to the physician–patient relationship in the care of cancer patients. Supporting systems through which patients can get more information and learn coping skills seems to be important when it comes to the mental/emotional well being of cancer patients. The author is framing this piece on the fact that there should be more support for cancer patients.

Going back to awareness of breast cancer I found another article in the Atkins Library database http://www.sciencedirect.com/science/article/pii/S0748798313001935#. The article “Breast cancer awareness month: does it really increase the breast cancer risk awareness?” Breast cancer awareness month is an annual international health campaign organized by major breast cancer charities every October to increase awareness of the disease and to raise funds for research. Hospital nurses were given a survey to measure their knowledge pre breast cancer awareness vs after breast cancer awareness month. The entire month of breast cancer awareness failed to increase hospital staff’s awareness of breast cancer risk factors. Therefore you see that the knowledge of the public isn’t being enhanced by all the breast cancer marketing that comes with the month of October. So is the extra attention given to breast cancer really contributing to awareness and a means for funds to help with research? The author is framing this piece with the negative aspects of breast cancer awareness month.

Equality in the Cancer World

In UWRT my group’s focus was “How can we make more people aware of the larger conversation around unknown forms of cancer and bring additional funding for research to the less commonly known forms of cancer”? This topic emerged from a classmate whose mother had Adult Non-Hodgkin Lymphoma. I read about this cancer on http://www.cancer.gov/cancertopics/pdq/treatment/adult-non-hodgkins/Patient/page2#_179&gt. Having a family member with cancer is tough to deal with, because ultimately they can die. I have members in my family that also have been diagnosed with cancer, so her inquiry question sparked my interest. I think others that have a love one who suffers from cancer would be interested in my group’s inquiry.

In the midst of my inquiring I found that I have an issue with the fact that breast cancer gets so much more attention then others and I find it unfair. As I realized that I wanted to know why breast cancer gets so much attention I googled. http://www.cancer.org/cancer/breastcancer/detailedguide/breast-cancer-key-statistics was able to give mesome facts. So I put myself in the shoes of those that may support “larger cancers” like breast cancer. I’m sure that people will argue that breast cancer gets so much attention because it’s the number 2 cause of death in women, and the most common cancer among American women.

I understand that people would think that more common cancers should be put on the front end. I know people would feel that cures for the more common and larger cancers are more important due to their position on the “leading cause of death scale”.I’m sure people are going to question what is a “little vs big cancer or a smaller vs larger cancer”. The idea of little and big cancers came from a blog https://kdemeny1.wordpress.com/2015/01/28/the-little-ones/.

All cancers can lead to death so personally I feel they should all receive the same amount of attention, they should all be marketed the same if at all, they should all receive equal funding. I think the marketing behind breast cancer is ridiculous. I stumbled on a post http://thinkbeforeyoupink.org/2014/11/top-5-highlights-from-think-before-you-pink-2014/. Evidence from a “think before you pink campaign” can help support that breast cancer awareness is too publicized. I feel like the whole Pink ribbon thing is blown out of proportion. The post outlined the fact that some companies are taking advantage of the pink ribbon concept and using for their own personal benefit. Initially I thought If these campaigns and mechanizing around breast cancer are helpful when it comes to awareness and funding then why cant other cancers use similar methods.

Before this form of inquiry was presented I’m afraid to say that I had never really paid attention to what form of cancer got more media attention. I did know the obvious that cancer is a huge issue. I know that there is ultimately no cure and that all cancer patients can do is undergo chemotherapy, which can be either a negative or positive experience. Personally I think that if we brought more awareness to the smaller ones maybe there will be more funding toward finding a cure for them. Sometimes you have to start small and then work your way up to more complicated issues. Working toward smaller cancers can be the foundation to being able to cure larger ones. After I did some searches online I realized that there are some organizations that do refer to all types of cancer and not just the largely publicized ones like breast cancer.

Due to my findings on http://www.choosehope.com/calendar-of-cancer-awareness-months I learned that each cancer has a month for awareness. I went on and had to just research some small cancers to find out about people that speaking out about each cancer. Internet searches lead me to personal video testimonials, articles and blogs on cancers. People suffering from cancer and their family and friends are the ones that speak out on the behalf of little ones. Through raising awareness education on symptoms and treatment can be learned. Supporters hope that greater knowledge will lead to earlier detection of cancer, which is associated with higher long-term survival rates, and that money rose for cancer will produce a reliable, permanent cure. I don’t feel that smaller cancers should take the place of larger ones in awareness. This made me question why can’t there be “equality” in the cancer world?

I can further apply the methods from the text to my questions “What knowledge can we gain through awareness of the “little ones” to reduce these cancer risks? Who is currently speaking out for the “little ones”? Both were something I never really thought about before, but I have them in mind now. While still exploring some research about them I know that I have to elaborate on what may help my 2 questions to evolve.

Links to what helped with my research…

http://www.cancer.org/cancer/breastcancer/detailedguide/breast-cancer-key-statistics

http://www.cancer.gov/cancertopics/pdq/treatment/adult-non-hodgkins/Patient/page2#_179&gt

http://thinkbeforeyoupink.org/2014/11/top-5-highlights-from-think-before-you-pink-2014/

http://www.cancertrialshelp.org/Icare_content/icMainContent.aspx?intAppMode=25

http://www.healthline.com/health-slideshow/best-cancer-blogs

http://www.choosehope.com/calendar-of-cancer-awareness-months

In the meantime and in between time

In UWRT 1103 we were divided into inquiry groups and each group focused on a particular topic. My groups focus was centered on the following question, “How can we make more people aware of the larger conversation around unknown forms of cancer and bring additional funding for research to the less commonly known forms of cancer”? As far as starter research goes two questions that I personally chose to focus on were “What knowledge can we gain through awareness of the “little ones” to reduce these cancer risks? Who is currently speaking out for the “little ones”?

As far as “who is speaking out for the little ones?” I did some research on cancer awareness. I came across http://www.choosehope.com/calendar-of-cancer-awareness-months. The site lists months of the year and below it has the type of cancer that awareness is being brought to. If there is a month dedicated to specific cancers you are bound to hear stories of experience, find support, raise money, and gain information. It felt good coming across this because I had no idea that awareness existed in this form. I am only familiar with October and breast cancer awareness month because it’s so publicized. It took me a few searches to find this because at first the main thing that search engines found were all breast cancer related. The whole page of link dealt with breast cancer alone, images, articles, blog posts, etc. I am still trying to wrap my head around why breast cancer awareness trumps all others and it isn’t even the number 1 cause of death when it comes to both women and men. I thought that it being the number one suggestion from my search was pretty unfair, and that thought alone links to my other research question.

As far as research goes on the other question, so far it has been tough. Finding information on who actually speaks out on the behalf of less mentioned cancers is hard to do. A lot of my searches went directly to the list of common cancers. Common cancer types includes cancers that are diagnosed with the greatest frequency, obviously this is the opposite of what I was looking for. I have realized that I probably will have to look into different cancers individually. Searching on them as a whole gives me less results. Hopefully my group can help me broaden my question so that I can answer it better. I am sure of other ways besides the Internet to go about answering this. In the meantime and in between time just to be sure back to the drawing board we go!